Feeling frustrated after check in w/ my Primary

Hi, I am just posting because I need a place to vent because I don't have many people in my close circle that deal with the Medical System on a regular basis and I feel like I just left the office this morning burnt out, frustrated, and like my entire experience had been invalidated by just one person.

Mid-November 2024 while I was working I started noticing a sensitivity to sound that I had not experienced before that persisted a few days with headaches not controlled by usual OTC meds. I assumed I was just sick but didn't have any other symptoms, rested, got plenty of water, etc. When it didn't improve and my head started hurting significantly worse with no break, I ended up at same day care, got stronger NSAIDS w/ no relief, went back to same day after about 10 days of same headache & got migraine cocktail that finally broke the headache. Since then I have been managing the near daily migraines I have w/ emergency medication that was prescribed to me, I have FL-41 glasses to help with photosensitivity (even the morning sun triggers the pain immediately), I wear loop earbuds at work that help me a great deal at work, and I use ice packs on my head when the pain is too bad. I can't go to the gym and be active like I used to because once my heart rate gets up, my pain intensifies. As far as I have been since November, the only way for me to avoid worsening my migraine is staying at home where the lights are already dim and keeping noise down or wearing my loops.

Oh I also broke and got a Cefaly device because of the reviews I saw on here. I got fatigued trying different medications with the doctors, waiting and waiting, my neurology department refusing my referral because I haven't tried and failed X amount of medications, not knowing when the pain will stop if ever, trying everything I can at home to see if anything I can do or change will help. I love the cefaly device. I finally got the most restful sleep I have had in a few months. I've only used it for less than a week though. In the meantime of dealing with dr appointments and trying/failing medications, I am also dealing with my job. I just started in October last year and I really love my job. I know I have legal protections but I am not able to take any extended kind of FMLA because I haven't worked one year yet. I also don't really have an option to not be working, because I need the insurance to be getting treatment for my headaches, and I need money to pay for my care. Not to mention the extra costs of non- medication aids like the loops, cefaly, and my glasses. I got in touch with an ADA consultant at my workplace and she gave me papers to take to my Dr about the accommodations I will need at work to help me, so that's what I had the appointment for this morning.

Usually appointments at my office are very fast and limited to just 1 issue, so I was not expecting to do anything more than discuss the accommodations I need at work and fill out the papers with the doctor I was seeing. I just by chance happened to get a last minute appointment with my primary, I didn't intend to discuss any further care about my headaches or the plan of action, I just needed the papers filled out for what I was requesting (alternative light source at work, permission to use my loop earbuds, permission to take breaks as needed). Unfortunately for me he decided to turn the appointment into a huge ordeal.

He asked me usual preliminary questions about my migraines and about my visits and everything. Quick note- I have been taking prescribed Adderall from this Doctor for 4 years now, only this Dr, I take it even less than as prescribed, so I only take it on work days with no side effects on the days I do not take my medication other than just obviously having ADHD. For the last 3 weeks or so I had been going without my Adderall in case it had been related to the headaches or not. I still had them the entire time I did not take my medication.

After his rapid fire questions he proceeds to tell me he won't be refilling my emergency migraine medication and that he believes my headaches are due to a dependency on Adderall, because when he took it as a child he got headaches ): . Even though I just told him I've been at least a few weeks without. So he won't be refilling the medication that I need to help me work, and he also tells me that I can't be working. I tell him that's not an option, I need to keep my job and he says "we can get you in touch with a social worker or financial services." I am holding back tears trying not to react in this man's face. He tells me to start taking Benadryl for the headaches, and I asked him isn't that indicated in Alzheimer's? He says only in the Elderly (I believe that is from taking Benadryl daily I will have to fact check the study but either way I don't want to take Benadryl), and that it's better and less risk than taking triptans. He also ordered a test for sleep apnea which he ordered for me 4 years ago and I already did and I said I don't have it and he said "yeah but that was borderline" like bro what does that even mean? this is the first time I'm hearing you tell me this?

I'm so incredibly frustrated. I felt like I was talking to a brick wall. Or worse. I have not had an experience like this with any other provider at this office. Everyone else has been considerate of my situation and needs and goals, and this guy just completely ignores what I'm telling him I'm experiencing. I feel like I have to get a new primary. Also I'm not taking the test for sleep apnea. I don't have trouble sleeping as long as I'm not in severe pain from my migraine. Thanks cefaly you're the employee of the month <3