Officially diagnosed after 9 months of waiting and feeling…weird.

Hey everyone. Long time lurker here - I’ve always loved the community in this subreddit, and appreciate everybody sharing their experiences.

TLDR; I had my lap last week and officially got diagnosed with endometriosis yesterday. Now I’m feeling just…meh.

Long version: I got unofficially diagnosed with endometriosis when I was 15 or 16 - they (understandably) didn’t want to put me through surgery and just put me on the birth control pill. I took the birth control until I was about 23 years old because I started to get pretty depressed and incredibly anxious.

Fast forward to April of 2024, six years after I took myself off of birth control - I started to bleed/spot in between my periods with HORRIBLE cramps. Went to the gynecologist and she suggested we do an ultrasound. I had what they suspected to be a chocolate cyst on my left ovary, so they suggested surgery with IUD insertion as well as pelvic floor PT.

I was told to follow up after the ultrasound in 3 months to schedule an appointment (I’m not sure why I had to wait 3 months) - July rolls around and I call the doctors office to schedule an appointment. Apparently my gynecologist doesn’t work there anymore and the closest appointment they had was on November 1st with the other gynecologist. No, I wasn’t notified from the office via mail or mychart that my gynecologist didn’t work there anymore.

I book that out (my insurance isn’t accepted at many other places) and wait. November rolls around and I meet the new gynecologist and she fast tracks everything. I get a blood test to double check that I don’t have PCOS and get the surgery schedule for this January.

Well now that the surgery is over and I have an official diagnosis with a brand new IUD…I’m just like…now what? Don’t get me wrong, I feel relieved and rid of some of my burden now that I have an official diagnosis. I’m happy to know that the pain I was in was from something…but I’m also just sad that I have to deal with this chronic illness.

I genuinely don’t know what to do with myself.