Does anyone have experience with taking Emgality?
Background: I had severe intermittent vertigo attacks (no vomiting or brain fog) several years ago, and an ENT told me I had Menieres and to watch my sodium intake. That worked for a while until I got COVID-19, which sent me into a tailspin and increased the frequency and severity of the vertigo attacks (along with full ear, ringing, vomiting, dry heaves, and accompanying severe brain fog after an attack).
I refused to go back to the same ENT, so my primary got me in to see an older ENT with some vertigo experience. He did several tests, including contrast MRI, and concluded I suffered from Vestibular Migraines. He referred me to a neurologist. Well, I am beyond frustrated with the Neurologist. He insists I MUST be suffering from migraines and ignores any other symptoms. It's like throwing a dart at a board. He keeps trying new medications in the hopes that something will help with my "migraines". The only med from the neuro that has helped is taking Sumatriptan during or after an attack. It seems to help significantly with the brain fog.
Well, today, the nero decided I should stop taking the Sumtriptan and start Emgality. According to him, the specialty pharmacist, and the drug maker's website, there are no side effects. However, I'm seeing otherwise from individuals who have posted online.
Since this is an injectable, I'm committed to the drug until it works its way out of my body.
So, I'm asking if anyone has taken this drug. Did it help? Did you have side effects you find aren't manageable? Did it decrease or increase your vertigo issues?
I did manage to get my primary doctor to prescribe Betahistine (I'm in the US), and it definitely has helped with full ear and vertigo, but it does give me headaches, and I'm 3 months in on that one (my Neurologist knows I'm taking it).
ANY feedback anyone may have is greatly appreciated.